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| Rubinstein-Taybi Syndrome |
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United States |
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A site devoted to the families and people diagnosed with this syndrome.
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| Related Site |
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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
ALtruis Biomedical Network : Information on the types, causes and treatments of pemphigus.
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Virus Unlikely to Cause Chronic Fatigue Syndrome (HealthDay)
HealthDay - THURSDAY, Feb. 25 (HealthDay News) -- A new study adds to
evidence that chronic fatigue syndrome doesn't have anything to do with
xenotropic murine leukemia virus-related virus (XMRV), but the researchers
point out that there's a caveat regarding American patients. |
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Approval Expanded for Breast Cancer Drug Tykerb (HealthDay)
HealthDay - MONDAY, Feb. 1 (HealthDay News) -- The U.S. Food and Drug
Administration has expanded approval for Tykerb (lapatinib) to include
postmenopausal women with hormone- and HER2-positive advanced breast
cancer who require hormone therapy. |
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