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Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents an
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Amedisys
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Amedisys is a leading multi-regional provider of home health care nursing services including skilled nursing, aides, PT, OT, ST, MSW and specialized nursing programs
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Conditions and Diseases\ Rare Disorders
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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
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Approval Expanded for Breast Cancer Drug Tykerb (HealthDay)
HealthDay - MONDAY, Feb. 1 (HealthDay News) -- The U.S. Food and Drug
Administration has expanded approval for Tykerb (lapatinib) to include
postmenopausal women with hormone- and HER2-positive advanced breast
cancer who require hormone therapy. |
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A New Way to Zap Away Uterine Fibroids (HealthDay)
HealthDay - TUESDAY, March 16 (HealthDay News) -- Focused ultrasound is an
effective way to get rid of uterine fibroids, the noncancerous but
troublesome tumors that can grow inside the uterus, new research
shows. |
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DNA Test May Cut Hospitalizations Caused by Blood Thinner (HealthDay)
HealthDay - TUESDAY, March 16 (HealthDay News) -- A simple genetic test that helps
doctors determine the best dose of the blood-thinner drug warfarin for
individual patients could reduce hospitalizations by one-third during the
early dose-adjustment phase, a new study has found. |
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