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Moyamoya Disease

United States

Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.




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Desc: Moyamoya Disease - Internet Support Group for MoyaMoya families
  Pictures of my MoyaMoya Disease STA-MCA surgery for MoyaMoya sufferers and their families

Category:    Conditions and Diseases\ Rare Disorders

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Related Site

Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
ALtruis Biomedical Network : Information on the types, causes and treatments of pemphigus.


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