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| Moyamoya Disease |
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United States |
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Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
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| Related Site |
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Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
ALtruis Biomedical Network : Information on the types, causes and treatments of pemphigus.
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Research Sheds Light on Causes of Parkinson's (HealthDay)
HealthDay - SUNDAY, Nov. 15 (HealthDay News) -- Gene mutations linked to inherited
Parkinson's disease also appear to be connected to the more common form of
the disease that strikes people whose relatives don't have it, researchers
now say. |
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Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) --
The best way to get a good prognosis when it comes to cancer is to get
diagnosed as early as possible -- and that's where cancer screening tests
come in. |
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Flood-ravaged Manila on alert for disease (AFP)
AFP - Authorities in Manila were Monday scrambling to prevent disease outbreaks as putrid water lay across vast sections of the Philippine capital following the worst floods in over 40 years, officials said. |
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