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| Human Growth Foundation |
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Information about growth-related disorders through education, research, and advocacy. Member driven organization.
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Human Growth Foundation Home Page
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helping adults and parents of children with disorders of growth and growth hormone through research, education, support, and advocacy
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Conditions and Diseases\ Rare Disorders
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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
ALtruis Biomedical Network : Information on the types, causes and treatments of pemphigus.
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Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) --
The best way to get a good prognosis when it comes to cancer is to get
diagnosed as early as possible -- and that's where cancer screening tests
come in. |
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Brain Protein Tied to Retardation (HealthDay)
HealthDay - WEDNESDAY, Oct. 21 (HealthDay News) -- Researchers say they've gained
new insight into how a growth factor -- a kind of protein that tells a
cell what to do -- could lead to mental retardation. |
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Genetic Clues May Lead to New Skin Cancer Therapies (HealthDay)
HealthDay - MONDAY, Aug. 31 (HealthDay News) -- Scientists have isolated a group of
genetic mutations involved in the growth of melanoma, the deadliest form
of skin cancer. Their work may lead to therapies with existing drugs that
target the same mutations. |
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