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| New Additions at Conditions and Diseases - Rare Disorders |
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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
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A New Way to Zap Away Uterine Fibroids (HealthDay)
HealthDay - TUESDAY, March 16 (HealthDay News) -- Focused ultrasound is an
effective way to get rid of uterine fibroids, the noncancerous but
troublesome tumors that can grow inside the uterus, new research
shows. |
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DNA Test May Cut Hospitalizations Caused by Blood Thinner (HealthDay)
HealthDay - TUESDAY, March 16 (HealthDay News) -- A simple genetic test that helps
doctors determine the best dose of the blood-thinner drug warfarin for
individual patients could reduce hospitalizations by one-third during the
early dose-adjustment phase, a new study has found. |
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Pain Relief Often Delayed for Cancer Patients (HealthDay)
HealthDay - TUESDAY, March 16 (HealthDay News) -- Palliative care services, which
help people who are seriously ill relieve symptoms such as pain, are now
found at most U.S. cancer centers, but many programs don't interact with
patients until it's too late, study findings show. |
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