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| Hereditary Disease Foundation |
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United States |
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Information about this non profit organization, news, newsletters, recommended reading and contact details.
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Hereditary Disease Foundation Home Page
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Welcome to the home page of the Hereditary
Disease Foundation, a non-profit, basic science organization dedicated to the
cure of genetic disease. 100% of all publicly donated funds is directed to the
support of biomedical research.
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Conditions and Diseases\ Genetic Disorders
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Providence Cystic Fibrosis Center : Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Down Syndrome Association of Western Australia : Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Nail Patella Syndrome : A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories.
Australian MPS & Related Diseases Society : Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of ev...
Patient UK : A list of resources and support for persons living in the UK who are interested in Alpha-1 Antitrypsin Deficiency.
South Dakota Cystic FibrosisCenter : Information on South Dakota CF Center in Sioux Falls.
The PREP Program : A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Hawkeye Area Down Syndrome Association : The organizations' goals, and also how to get on the MR Waiver List.
Michigan Pulmonary Disease Community, Inc. : Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
Iron Disorders Institute : Non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis.
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Health Tip: Help Your Newborn Learn (HealthDay)
HealthDay - (HealthDay News) -- Your newborn isn't too young to begin
learning, the Nemours Foundation says. Age-appropriate toys can stimulate
the developing senses of touch, sound and site. |
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Approval Expanded for Breast Cancer Drug Tykerb (HealthDay)
HealthDay - MONDAY, Feb. 1 (HealthDay News) -- The U.S. Food and Drug
Administration has expanded approval for Tykerb (lapatinib) to include
postmenopausal women with hormone- and HER2-positive advanced breast
cancer who require hormone therapy. |
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Health Tip: Caring for Your Braces (HealthDay)
HealthDay - (HealthDay News) -- While people who have braces don't have to
switch to a special diet, there are foods that can cause problems and
should be avoided, the Nemours Foundation says. |
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Diabetics Less Prone Now to End-Stage Kidney Disease (HealthDay)
HealthDay - TUESDAY, Dec. 29 (HealthDay News) -- The incidence of end-stage kidney
disease, one of the most serious complications of diabetes, rose steadily
in people with diabetes for decades. But, in 1996, the rate of
diabetes-related end-stage kidney disease finally began to decline. |
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