 |
| GenomeLink |
 |
 |
|
|
United States |
|
An introduction of Fragile X Syndrome, followed by links to articles, clinical trials and support groups.
|
 |
|
|
|
| Related Site |
|
|
Providence Cystic Fibrosis Center : Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Down Syndrome Association of Western Australia : Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Nail Patella Syndrome : A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories.
Australian MPS & Related Diseases Society : Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of ev...
Patient UK : A list of resources and support for persons living in the UK who are interested in Alpha-1 Antitrypsin Deficiency.
South Dakota Cystic FibrosisCenter : Information on South Dakota CF Center in Sioux Falls.
The PREP Program : A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Hawkeye Area Down Syndrome Association : The organizations' goals, and also how to get on the MR Waiver List.
Michigan Pulmonary Disease Community, Inc. : Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
Iron Disorders Institute : Non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis.
|
|
|
 |
 |
 |
Approval Expanded for Breast Cancer Drug Tykerb (HealthDay)
HealthDay - MONDAY, Feb. 1 (HealthDay News) -- The U.S. Food and Drug
Administration has expanded approval for Tykerb (lapatinib) to include
postmenopausal women with hormone- and HER2-positive advanced breast
cancer who require hormone therapy. |
|
Swine Flu in Pregnancy Leads Some to ICU (HealthDay)
HealthDay - THURSDAY, March 18 (HealthDay News) -- Pregnant women with the H1N1
(swine) flu were 13 times more likely to become critically ill than
non-pregnant women infected with H1N1, according to a report from
researchers in Australia and New Zealand. |
|
With Faulty Food Labeling, Who's Minding the Store? (HealthDay)
HealthDay - FRIDAY, March 19 (HealthDay News) -- Reports in recent months of
inaccurate, misleading ingredient lists or calorie-counts on store-bought
foods are leading many to wonder if food-product labeling can be trusted,
and who -- if anyone -- is checking that it's true. |
|
Health Tip: Doing Baby's Laundry (HealthDay)
HealthDay - (HealthDay News) -- Some babies have sensitive skin, so many
parents use detergent that's specially designed for babies. Trouble is, it
may not get everything clean. |
|
|
 |
