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| Cystinosis Research Network |
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United States |
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Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
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| Related Site |
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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Cystinosis Central : Information about this disorder, conferences, data for physicians, updates and links.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
ALtruis Biomedical Network : Information on the types, causes and treatments of pemphigus.
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Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) --
The best way to get a good prognosis when it comes to cancer is to get
diagnosed as early as possible -- and that's where cancer screening tests
come in. |
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Psychotherapy Beats Light Treatment for SAD (HealthDay)
HealthDay - THURSDAY, Oct. 29 (HealthDay News) -- As daylight hours dwindle,
people with seasonal affective disorder (SAD) can often feel the onset of
wintertime depression, but a new study suggests one type of remedy may
work better than another at banishing the SAD blues. |
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'Bioidenticals' not FDA-approved, contain estrogen (AP)
AP - EDITOR'S NOTE: Ten years and $2.5 billion in research have found no cures from alternative medicine. Yet these mostly unproven treatments are now mainstream and used by more than a third of all Americans. This is one in an occasional series examining their use and potential risks. |
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Research Seeks Cause of Preeclampsia (HealthDay)
HealthDay - THURSDAY, Sept. 10 (HealthDay News) -- New research is shedding
some light on the development of preeclampaia, a dangerous condition that
can cause miscarriage and death in pregnant women. |
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