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Cystinosis Central

United States

Information about this disorder, conferences, data for physicians, updates and links.




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Desc: Cystinosis Central
  This is the OFFICIAL site for information on Cystinosis.
Category:    Conditions and Diseases\ Rare Disorders

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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
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Tai Chi May Help Ward Off Knee Pain in Seniors (HealthDay)
HealthDay - THURSDAY, Oct. 29 (HealthDay News) -- Want to improve that osteoarthritis in your knee? New research suggests that regular Tai Chi exercise can reduce pain and help your knee function better.

After Age 55, Workplace Stress Seems to Decline (HealthDay)
HealthDay - THURSDAY, Oct. 29 (HealthDay News) -- Feeling stressed at work? If you're younger than 50, it might get worse -- at least for a while.

Health Tip: At Risk for Another Heart Attack? (HealthDay)
HealthDay - (HealthDay News) -- If you've had a heart attack, you may be at risk for another one unless you make some major lifestyle changes.

Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) -- The best way to get a good prognosis when it comes to cancer is to get diagnosed as early as possible -- and that's where cancer screening tests come in.

Ankle Circulation Could Warn of Future Strokes (HealthDay)
HealthDay - FRIDAY, Aug. 28 (HealthDay News) -- A simple test of blood circulation in the ankle could help doctors identify patients at high risk of suffering another stroke, researchers say.

Cooling May Reduce Brain Lesions in Newborns (HealthDay)
HealthDay - THURSDAY, Nov. 5 (HealthDay News) -- Babies who are deprived of oxygen at birth often go on to have lifetime disabilities, but research has shown that cooling infants can help prevent problems.

Health Tip: Follow Directions When Taking Medication (HealthDay)
HealthDay - (HealthDay News) -- A number of adverse effects can result if you don't take a medication as directed.

Health Tip: What's Behind Hip Bursitis? (HealthDay)
HealthDay - (HealthDay News) -- Bursitis of the hip is a painful condition that occurs when the bursa -- a small, cushiony sac overlying the hip -- becomes inflamed.

Early Morning Colonoscopies May Find More Polyps (HealthDay)
HealthDay - FRIDAY, Nov. 6 (HealthDay News) -- Early morning colonoscopies detect more polyps than colon cancer screenings done later in the day, and the number of polyps found decreases by the hour as the day progresses, a new study has found.

Health Fears Are Nothing to Sneeze At (HealthDay)
HealthDay - FRIDAY, Nov. 6 (HealthDay News) -- It may sound hard to believe, but just one sneeze is enough to increase your fear not just of contracting flu, but also of dying from a heart attack at an early age, dying from an accident or being the victim of a fatal crime, new research shows.

Cystinosis - Cystine Determination - Cystagon - Body Surface Area - Cysteamine - Renal Fanconi Syndrome
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