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Cystinosis Central

United States

Information about this disorder, conferences, data for physicians, updates and links.




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Desc: Cystinosis Central
  This is the OFFICIAL site for information on Cystinosis.
Category:    Conditions and Diseases\ Rare Disorders

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Moyamoya Disease : Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.
Progeria Research Foundation, Inc. : Medical research, education, support, and fundraising for this "pre-mature aging" disease.
University of Washington: Werner Syndrome : Images of persons with this disease and diagnostic criteria for WRN and contact information for a central repository of WS data and research and materials.
MedicineNet.com: Medical Dictionary : An explanation of what cleidocranial dysplasia is and how it is transmitted.
Rubinstein-Taybi Syndrome : A site devoted to the families and people diagnosed with this syndrome.
Cystinosis Research Network : Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
Zoe Lambert : Personal account of this condition, and surgery to receive titanium rib implants.
National PKU News : Site includes news and information about phenylketonuria, a rare inherited metabolic disease.
Human Growth Foundation : Information about growth-related disorders through education, research, and advocacy. Member driven organization.
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Tai Chi May Help Ward Off Knee Pain in Seniors (HealthDay)
HealthDay - THURSDAY, Oct. 29 (HealthDay News) -- Want to improve that osteoarthritis in your knee? New research suggests that regular Tai Chi exercise can reduce pain and help your knee function better.

After Age 55, Workplace Stress Seems to Decline (HealthDay)
HealthDay - THURSDAY, Oct. 29 (HealthDay News) -- Feeling stressed at work? If you're younger than 50, it might get worse -- at least for a while.

Health Tip: At Risk for Another Heart Attack? (HealthDay)
HealthDay - (HealthDay News) -- If you've had a heart attack, you may be at risk for another one unless you make some major lifestyle changes.

Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) -- The best way to get a good prognosis when it comes to cancer is to get diagnosed as early as possible -- and that's where cancer screening tests come in.

Ankle Circulation Could Warn of Future Strokes (HealthDay)
HealthDay - FRIDAY, Aug. 28 (HealthDay News) -- A simple test of blood circulation in the ankle could help doctors identify patients at high risk of suffering another stroke, researchers say.

1 conjoined twin talking after separation surgery (AP)
AP - A Bangladeshi toddler separated this week from her conjoined twin sister was talking and behaving normally after being woken Thursday from a medically induced coma, the head of the surgery team said.

Heart Failure Drug May Help More in Higher Doses (HealthDay)
HealthDay - TUESDAY, Nov. 17 (HealthDay News) -- For people with heart failure, high doses of the drug losartan, an angiotensin-receptor blocker (ARB), reduce the risk for hospital admission and death, a new study shows.

Health Tip: Thinking About Organ Donation? (HealthDay)
HealthDay - (HealthDay News) -- Being an organ donor means you agree to allow your healthy organs and tissues to be donated upon your death to others who need transplants.

Health Tip: Help Prevent Bunions (HealthDay)
HealthDay - (HealthDay News) -- A bunion is a painful protrusion at the base of the big toe that can make even walking a chore. A severe bunion can affect the alignment of several toes, causing some to overlap.

Niacin Adds No Benefit for Statin Patients: Study (HealthDay)
HealthDay - WEDNESDAY, Nov. 18 (HealthDay News) -- Taking the B vitamin niacin offers no additional benefit to seniors with coronary artery disease who are already prescribed cholesterol-lowering statin drugs, U.S. researchers say.

Cystinosis - Cystine Determination - Cystagon - Body Surface Area - Cysteamine - Renal Fanconi Syndrome
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