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| Cystic Fibrosis.com |
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Tools, resources, support groups, online resources, news and treatment information.
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CysticFibrosis.com | A Support Community for those dealing with Cystic Fibrosis
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Welcome to the community for people concerned with cystic fibrosis. Visit the interactive forums to find support and share information; celebrate and remember with the community.
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Conditions and Diseases\ Genetic Disorders
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Providence Cystic Fibrosis Center : Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Down Syndrome Association of Western Australia : Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Nail Patella Syndrome : A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories.
Australian MPS & Related Diseases Society : Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of ev...
Patient UK : A list of resources and support for persons living in the UK who are interested in Alpha-1 Antitrypsin Deficiency.
South Dakota Cystic FibrosisCenter : Information on South Dakota CF Center in Sioux Falls.
The PREP Program : A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Hawkeye Area Down Syndrome Association : The organizations' goals, and also how to get on the MR Waiver List.
Michigan Pulmonary Disease Community, Inc. : Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
Iron Disorders Institute : Non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis.
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