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Cornelia de Lange Syndrome (CdLS) Foundation Outreach

United States

Welcome to the official web site of the CdLS-USA Foundation. We hope the information on this site will shed light on any questions you may have about Cornelia de Lange Syndrome and this Foundation.

The CdLS Foundation is a family support organization which exists to reach out, provide help and offer hope to everyone touched by this genetic condition. Our primary purpose is to offer support on a personal basis and we encourage you to let us know how we can help you and the person in your life with CdLS.




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Desc: CdLS USA Foundation: Cornelia de Lange Syndrome
  The Cornelia de Lange Syndrome (CdLS) Foundation is a nonprofit [501 (c) (3)] voluntary health organization based in Avon, Connecticut (USA). The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally. Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States and the expertise of professionals from the fields of genetics, medicine, education, and psychology in our collective effort toward advancing global recognition and societal understanding of the syndrome. Once you become familiar with a few features common to the syndrome, you will likely recognize the faces of people with CdLS forever. And once you come to know the faces of people with Cornelia de Lange Syndrome, we ask... 'How could you ever forget?' The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

Category:    Support Groups\ Conditions and Diseases

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