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Conditions and Diseases - Rare Disorders

[Records 1-10 of 29]
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National Organization for Rare Disorders

Category: Conditions and Diseases - Rare Disorders
Location: Danbury, CT - United States

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, ...

 
Moyamoya Disease

Category: Conditions and Diseases - Rare Disorders
Location: Wichita, Kansas - United States

Support group for those diagnosed with this condition and their families. Includes medical information, personal account, links and a message board.

 
Progeria Research Foundation, Inc.

Category: Conditions and Diseases - Rare Disorders
Location: Peabody, Massachusetts - United States

Medical research, education, support, and fundraising for this "pre-mature aging" disease.

 
Rubinstein-Taybi Syndrome

Category: Conditions and Diseases - Rare Disorders
Location: Tucson, Arizona - United States

A site devoted to the families and people diagnosed with this syndrome.

 
Cystinosis Research Network

Category: Conditions and Diseases - Rare Disorders
Location: Burlington, Massachusetts - United States

Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.

 
Zoe Lambert

Category: Conditions and Diseases - Rare Disorders
Location: Buffalo, New York - United States

Personal account of this condition, and surgery to receive titanium rib implants.

 
National PKU News

Category: Conditions and Diseases - Rare Disorders
Location: Seattle, Washington - United States

Site includes news and information about phenylketonuria, a rare inherited metabolic disease.

 
Human Growth Foundation

Category: Conditions and Diseases - Rare Disorders
Location: Glen Head, New York - United States

Information about growth-related disorders through education, research, and advocacy. Member driven organization.

 
ALtruis Biomedical Network

Category: Conditions and Diseases - Rare Disorders
Location: Birmingham, Alabama - United States

Information on the types, causes and treatments of pemphigus.

 
The Erythromelalgia Association

Category: Conditions and Diseases - Rare Disorders
Location: Seattle, Washington - United States

A non-profit organization dedicated to research and education regarding this painful disorder. Offers details about the disorder, the organization, FAQs and membership information.

 
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