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| Australian MPS & Related Diseases Society |
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Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of ev...
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| Related Site |
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Providence Cystic Fibrosis Center : Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
Down Syndrome Association of Western Australia : Works to support the community to develop the potential of people with Down syndrome (Trisomy 21) to live a valued life.
Nail Patella Syndrome : A patient-written site offering relevant medical information, photos, x-rays, discussion/support group, links to research and guest books where over 350 people have told their NPS stories.
Patient UK : A list of resources and support for persons living in the UK who are interested in Alpha-1 Antitrypsin Deficiency.
South Dakota Cystic FibrosisCenter : Information on South Dakota CF Center in Sioux Falls.
The PREP Program : A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
Hawkeye Area Down Syndrome Association : The organizations' goals, and also how to get on the MR Waiver List.
Michigan Pulmonary Disease Community, Inc. : Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
Iron Disorders Institute : Non-profit National Voluntary Health Agency that provides information about disorders of iron such as hemochromatosis.
North American Cystic Fibrosis Conference in New Orleans : Information on program and location.
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Health Tip: Screening for Cancer (HealthDay)
HealthDay - (HealthDay News) --
The best way to get a good prognosis when it comes to cancer is to get
diagnosed as early as possible -- and that's where cancer screening tests
come in. |
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GAO: FDA fails to follow up on unproven drugs (AP)
AP - The Food and Drug Administration has allowed drugs for cancer and other diseases to stay on the market even when follow-up studies showed they didn't extend patients' lives, say congressional investigators. |
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New Treatments Hold Hope for Failing Eyes (HealthDay)
HealthDay - SUNDAY, Sept. 27 (HealthDay News) -- Already a leading cause of
vision loss among people older than 60, age-related macular degeneration
is expected to skyrocket in numbers over the coming decades as the U.S.
population grows older. |
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Scientists Spot How Sugar 'Feeds' Tumors (HealthDay)
HealthDay - THURSDAY, Aug. 20 (HealthDay News) -- New information about how
sugar "feeds" tumors has been uncovered by U.S. researchers, who said the
finding may also have implications for other diseases such as
diabetes. |
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